From where he sat, he could see down the hallway, but I could not. While TJ was in Texas, Travis and I planned to surprise him with a newly remodeled bedroom in the basement upon his return. Immediately after walking into his room, I noticed a calendar with a picture of China, but it was open to the wrong month. They were discharged from rehab within a couple days of each other, and we hoped one day we would see each other again. 492 talking about this. I then went upstairs to TJ’s room and sat with him until he woke up. God sees your struggle, and He reminds you in His Word that this struggle is only temporary. I grabbed a pen and paper, and I held his hand while he finger spelled, “C – a – n – I – s – t – i – l – l – g – e – t – a – m-i-n-i – f-r-i-d-g-e?” All the air left my body. Travis and I stayed with TJ until we were shooed out. I decided that no matter what lay ahead, I wasn’t going to get angry at Him and turn my back on Him but that I was going to trust Him and remain faithful. I didn’t know what to say, and my mind raced to come up with an answer. 1 Thessalonians 4:13 says, “Brothers and sisters, we do not want you to be uninformed about those who sleep in death, so that you do not grieve like the rest of mankind, who have no hope.” As believers in Christ, we mourn as if our loved one has gone away on a long trip, remembering with full assurance that after awhile we will see them again. Because of the work Jesus Christ did on the cross for us, we have hope! A very large heart stained glass window is located on the second floor of the Rochester Ronald McDonald House. Imagining them both healthy, joyful, together, and not in pain anymore is a comforting thought. While I was a resident, I felt an overwhelming sense of love from the employees, volunteers, and other families with sick children. April 17, 2019 staff Music 0. That's a long time for anyone but especially for a baby who changes so quickly! There are times when I long to be back in my room at the Ronald McDonald House where God was so near and TJ was within a short walking distance up the street, but God has other plans for me now. Last year as a freshman, he opted not to participate in any of the Homecoming festivities. While I’m Waiting. Many times while Chandler was living there, she expressed that she was homesick and wanted to move back to Des Moines but was unfortunately unable due to jobs and financial reasons. Some of the posts on While I'm Waiting contain clickable affiliate links. John Waller. In the waiting, God pursues our hearts more intimately and deeply. Proverbs 17:22 of the New Living Translation says, “A cheerful heart is good medicine, but a broken spirit saps a person’s strength.”  Scripture teaches that a cheerful heart is more than just great for the personality, it is good medicine for the body as well. I didn’t know where to go from here or how to help my son who was suffering so miserably. Suddenly, Janet and Tom came into my view. Thank you for posting these scriptures. When TJ asked about it again, we told him we were sorry, and we reassured him we would definitely get him one soon. Throughout the pages of Trapped Within, readers will wonder how this family endured such tragedy. They were quite entertaining to watch. Enthralled by the beauty of the large bird, I stood at the door for a while trying to remember if I had ever seen an owl in person before. A tangled mess of emotions had been swirling inside me for months. I clung to the Bible verse Jeremiah 29:11 throughout TJ’s illness and death. We attend Christmas parties, enjoy our favorite holiday foods, and delight in the wonder and excitement dancing in our children’s eyes. He couldn’t hold his head up anymore. Because I had the same experience a couple of weeks prior, I knew what that meant: He wasn’t doing well. Sorry, your blog cannot share posts by email. Homecoming - a spirit-filled week of activities leading up to the Homecoming football game and typically followed by a Homecoming dance.! The 27th marks the date that my son TJ has been in heaven with Jesus for two years. At the end of the woman’s life, a cardinal perched outside her window as she lay dying. While I'm Waiting (Live) (feat. View Download Album. Waiting to brought into full time music ministry for the past 7 years, waiting to have a child for the past 3 years.. waiting for the adoption of my nephew to go through for 3 years. May the force be with you!” TJ would then throw his head back, make a loud humming noise, and shake his head back and forth. The title song — heard here in two versions — remains an eloquent invocation of a … Yesterday, it caught my attention, and the memories began flooding in. It went so well with the movie, on so many levels. At that moment hope sprung to life again within me. BUY … My MIA status is largely due to the fact that I’m in the middle of writing a book about TJ’s story. A week after the surgery, he went into respiratory failure. In the spring of 2013, TJ was diagnosed with a heart defect requiring surgery, and the mini fridge was then the last thing on anyone’s mind. $ 0.00. We had gotten through it. One morning I entered the PICU and noticed the young man’s room was full of medical staff. TJ was two years into his brain injury and had just moved back home two months prior. God is so good! Before & After: a Little Tykes Cozy Coupe makeover! TJ’s youth pastor and kids from his youth group came back to the room to show their support. He ripped his IVs out and had to be tied down to the bed. I will strengthen you, yes, I will help you, I will uphold you with My righteous right hand.” Isaiah 41:10. Remind yourself often of times when You did feel Him walking beside you. Like any 2-year-old, Dylan loved to jump in the pool and have Uncle TJ catch him over and over again, and by the end of the summer, Dylan grew brave enough to jump in, be caught, and then promptly sink to the bottom of the pool with Uncle TJ only to shoot back up again. Then I became upset with myself for being so dramatic and reassured myself, “They do this all the time. It’s hard to find a picture of them when they were youngsters without their arms around each other. So, if even upright and blameless Job experienced God’s stillness during tragedy, then we must expect that we will too. “He has been in the shower for 45 minutes, and he won’t get out. However, because I didn’t want to intrude on her privacy, I kept to myself. A few days later, I finally introduced myself. Right before TJ’s surgery, I had taken a Beth Moore Bible study called Believing God. $8.91. It bonds us with others, lessens pain, decreases stress, and helps us cope with sadness. You need to listen to your sister. Because the God I know says He loves me with an everlasting love. His speech therapist thought that he would talk again, although his voice might sound different. Before he left, I told him I hoped one day when he and TJ were better, they could meet. They bowled, went to Rangers baseball games, and ate at fun restaurants, but their favorite activity together was swimming. Chandler was grief stricken to lose her brother and went home every night researching other hospitals we could transfer him to and different procedures we could try like lung transplants in hopes of prolonging his life. That was brutal news for a sibling to hear. Since I had seen TJ walking and talking in Des Moines for a week after his heart surgery, I truly didn’t believe he was as bad as the doctors at Mayo said he was. There are many times when we do not understand what God is doing in our lives. He knew how much this was hurting me, but He wanted me to praise Him despite the terrible storm I was in. Definitely made me look back and realize they really are happiest when they are where they feel they belong. 5 out of 5 stars (1 Review) In Stock. Homecoming 2017 - traditions both new and old. As we walked down the hallway to the waiting room, fear suddenly overcame me. I learned many things from her about hospital life and what life would be like when we got out. During this hospitalization, Tom was fighting Leukemia, but he’d had a variety of health issues for many years prior. Whenever TJ was in the hospital, we generally never left him alone because communication with the nursing staff was very difficult, so Chandler took the evening caregiver shift. Questions like “What happened to our son?” and “How can we help him if we don’t know what’s wrong?” plagued us day and night. Exhausted, I laid down on TJ’s couch. Reviewed in the United States on June 25, 2013. Worship While I'm Waiting. Hello, Friday! Tom and Janet were now just down the hall from TJ and me, and we visited them frequently. TJ was in a corner room in the left corner of the horseshoe. For quite some time now, I’ve been writing a book about my son TJ. In fact, things were getting worse. Even though his confusion got better, his talking became a whisper, and then he quit being able to talk altogether, and he stopped being able to write. City of Peace Media released the album on August 21, 2015. When everything around us starts to crumble, we must resist the human urge to grumble against Him and trust that He is always at work, that He always has a plan, and He always has our best interest at heart. Laundry.”, When I arrived at TJ’s room later that morning, the nurse excitedly — and with a few giggles — retold the story and added, “I wonder how long he has been lying in that bed, staring at that board, and planning to change Dr. Landry’s name?!”. Get it together.” However, unbeknownst to us, our descent into hell had already begun. Was I going to take what I learned and apply it to my life, or was I going to remain untouched? She couldn’t wait for him to get healthy again and be discharged. While jumping on a bus may sound like a good idea sometimes, it may end up causing you greater problems in the long run. They were the perfect match. That was how he laughed. That was all it took, and then he got out. Tears filled my eyes and I quickly went and scooped her up! That would be the last time I ever saw my son whole. The PICU at Mayo Clinic is in the shape of a horseshoe with patient rooms occupying the outside of the curve. So the next time life becomes overwhelming and you’ve had just about all you can take, remember to laugh and place your trust in the Lord, and instantly He will give you a new perspective. It was a battle and the house was winning! (Jeremiah 31:3), The God I know leads me in paths of righteousness. A very determined TJ, intent on a mischievous mission, walked over to the white board and erased Dr. Landry’s name with his fist. The twisting lasted all day. To my surprise, there was a very large owl perched on the fence that borders the northern side of our property. Does life ever get to be too much for you and you just feel like throwing in the towel or catching the nearest bus bound for sun and fun? His arms were twisting into strange positions, and his walking was getting worse. They were testing for it, and we were anxiously awaiting the results that would shed light onto the mystery. The sickest kids have the most equipment and need more space. Immediately after, the neurologist then came in and said they were now going to test for another autoimmune disease called Guillain-Barre. While I’m Waiting is mostly a tastefully-arranged midtempo affair, though “Quest” spices things up with some astringent guitar riffage and “Our God Reins Here” aims for a brawny arena-rock sound. It was very small but provided him with everything he needed. I don’t know how long I had been asleep, but I awakened to the song by Casting Crowns Praise You in This Storm going through my head. True to its slogan, The Ronald McDonald House is truly the “house that love built.”. I didn’t want to remind him of all of his deficits and squelch any shred of hope he — or I –had, so I answered, “Sure, of course, you can still get a mini fridge.”  But then after answering, I immediately felt terrible that maybe I had just given him false hope. “And He said, ‘My presence will go with you, and I will give you rest.’”Exodus 33:14, “What I am doing you do not understand now, but afterward you will understand.”John 13:7. Her wedding venue was our family room. I was now at a crossroads. The old saying “laughter is the best medicine” has been proven to be true, and studies have shown laughter has powerful health benefits. All three of us sauntered down the stairs to the bedroom together to reveal the surprise. This verse meant so much to me that it is even on the back of TJ’s headstone. His arms enveloped me every day as He walked beside me. I will serve You while I’m waiting I will worship while I’m waiting on You, Lord: 4 stories about "While I’m Waiting" Dolly King says: May 19, 2017 at 10:21 am. Missy. This reveal has been a LONG time coming but before I get too far, I want to share a little backstory with you. I decorated the room with a poster of a Navy Seals Sniper on the wall, a black manly comforter on the bed and black area rug under the drum set, and brown accessories in the bathroom. Read more. TJ’s heart surgery took around six hours. The surgeon came out after it was over. He was getting stronger and could walk on his own with just one person gently guiding him. Comment Report abuse. In the beginning of TJ’s hospitalization, she was frustrated and didn’t understand why God would bring her here to be TJ’s caregiver just to sit in a hospital day after day with him, but after TJ’s death, she was able to look back and see God’s loving hand orchestrating her move back home at just the right time so she could spend every single day of the last three months of TJ’s life with him. Listen to your mother! I assumed that someone he knew from the medical staff was walking toward him, but I could not see who it was. On Tuesday, it was after 9pm when I finally pulled into our driveway. I responded, “Well, he asked for a mini fridge for his bedroom at home this morning.”  And then I added, “But I don’t know what he thinks he’s going to put in it because he can’t swallow anything.” And at that moment the ridiculousness of what our lives had become hit me, and I began to laugh uncontrollably. 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